March 9th Visit to Children's

Today was another 6 hour round trip to Omaha to see Dr Zapata. Clinically Ashlyne is doing very well, she is having no symptons of her Crohn's. Weight wise he considers her stable, though Ash is not happy with her increased weight. Heighth he is okay with since May of 08 she has grown 2.4 cm, her medications can cause stunted growth as well as active disease, we will continue to watch growth. Her labs are still under close monitoring as there is still much instability and unanswered questions to why the flucuations. Her white cell count and segments are down again putting her at greater risk for infection, her white count was 3.69 and seg (nuet #) down to 900 today. She needs to stay away from sick people and should really wear a mask but she really does not want that. So we will monitor this. Her ALT (liver tox levels) are back up to 97. Two weeks ago white cell was 4.1/1800 and liver 41. Dr Z can not explain the up and down. We will do labs again next week.
He is making no real changes in her treatment or diet. The only change is he is dropping her to 20mg of prilosec instead of 40mg. We do not return until April 27th for now. In April she will be tested for her 6mp again unless something alarms him in her regular labs.
Not sure if no news is good news but for now that is what we have. Dr Z continues to say he wants to avoid putting her on Remicade so we will continue to monitor her.

Wendy