Monday Ashlyne had labs drawn again. Tuesday we went into our primary doctor here in Kearney due to the increased number and intensity of Ashlyne's head aches. Dr Lindstrom (primary) is quite sure it is from her Entocort (budesonide) and she needs to increase how quickly she starts on Tylenol so they do not get out of control. Dr Z says he will continue to monitor them, he went thru past notes and she has complained of headaches for quite some time, they have intensified since Mid January, if they continue or get worse he may consider running a CAT scan.
Over all Ashlyne's appetite is still not what it was, she does not eat all her allotted solid foods even. Ashlyne's white cell count is still about the same, very low 3.9, her liver tox levels have come down from 96 to 71 so that is good news, she still needs to be below 31.
Ashlyne continues to wear a mask at school, church, youth group, Wal-Mart etc, her risk for infection and illnes is very high. Ashlyne and her friends Breana and Delaney came over last weekend and decorated masks to at least make them fun.
1 comment:
Oh, those are so cute. Why didn't we think of that Wendy all those years of working in the dental office? Ashlyne..you are beautiful!!
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