Thursday, January 29, 2009
Detailed Update
Ashlyne had a 6 week check on Tuesday, Dr Zapata did not run blood labs since Ashlyne was a little dehydrated due to her having to fast for her ultrasound. Initial ultrasound looked like inflammation or thickening of the Terminal Ileum was still present, upon pushing Ash did experience some pain but minimal. She has still had no growth in height, she is up to 91 pounds but Dr Z is sure 8+ pounds is prednisone. She is off prednisone officially as of Tuesday. He is making no changes, we will go back in 6 weeks and monitor her blood labs until then and then run the 6mp and stool sample test again then. IF she remains asymptomatic and labs stay good we may make diet modifications in April. Ashlyne's headaches were better today but when she came to pick up her meds to go to her dad's she asked for Tylenol so they are still there but not as bad. A very exciting praise is the Crohn's and Colitis foundation called tonight and Ashlyne is 1 of 12 kids from Nebraska getting to go to California for Crohn's & Colitis camp in July. The camp is called the Painted Turtle, founded by Paul Newman. Dr Z did say on Tuesday he would sign her off and plan on her attending unless she goes into a severe flare. Pray she remains stable until after camp!!!
Subscribe to:
Post Comments (Atom)


No comments:
Post a Comment