11/8/08 Update

As of 7:30 this morning Ashlyne had not passed the test pill so we went down for xrays to see where it is at. To our disappointment it is stuck in her colon at the first stricture site, the inflammation is so great that it can not pass. So this means no camera pill on Monday, Dr Attard is not sure what he wants to do now for sure. He wanted to talk to Dr Z and Dr Septer, he will see us Monday. He wants Ashlyne to go to 60% liquid diet and 40% fat and protien now too. So she will get 830 caloreis a day by food, protein and fats basically, no fruit, veggies, or fiber and very limited carbs about 200 calories at most (this would be about 8 tator tots or 1/2 a medium baked potato, the other 1240 calories will be by liquid supplements. The food department messed up and did not get us liquid supplements until 11:30 today, Ash was pretty hungry. The liquid supplement will be about 32-36 ounces a day. She has to take in 60 total ounces of fluids a day so besides her supplement she will need to drink that equal amount in water. Ashlyne's IV also collapsed this morning so we had to put in a new one, that did not go over very well with her. Her hands are very bruised and sore, the first day on the first attempt it went thru the vein and bubbled up a big blood pocket and that is still swollen, her right hand has had two IV's now and is just plain sore. Please pray for Ashlyne's spirits, the limited diet makes her upset, I keep redirecting her focus to the fact that this is just a season and once the inflammation can get into control she will not have to stay on this restrictive of a diet. The diet is a better answer right now than doing remicade, Dr Attard wants to try to keep her off that as long as possible due to her age and the side effects. The saga continues and we are just taking each day one at a time.

Wendy