Dr Attard was in this morning, below is the plan and what is happening so far. Ashlyne did not rest well last night, she did not get to take her prednisone until late yesterday so she was totally wound up. Ashlyne got to eat last night she was thrilled, the down side pain started again this morning.
- Waiting for test pill to pass
- Started intravenous prednisone (increasing her dose from 20mg to 40mg)
- Taking her 6MP back up to 50mg a day (will have to monitor liver tox weekly as this high dose of 6MP is creating toxic liver levels on Ash)
- She is taking Flagyl - they feel there maybe increased bacteria flora levels in her gut
- Change her diet to 60% high protein high fat, no fiber, low carb diet, the rest of her nutrients will come from liquid supplement drinks, limited carbs
- start her on miralax (laxative to keep things flowing)
- Take camera pill Monday
- MRI shows 2 areas of stricture but they do feel it is tissue inflammation stricture and not thickening hard stricture
- Over the weekend we will experiment with the different drink supplements and work with dietician on Ashlyne's intake
- We will do this treatment of increased meds and diet restriction for 4-8 weeks to get healing.
- In 4 weeks we will have an ultrasound to measure whether inflammation has changed. Depending on those findings and her symptoms the next step will be decided.
- Dr Attard is happy that no surgery is needed at this time. He is reluctant to put her on Remicade yet, he wants to try to achieve control without having to be so aggressive.
- If we can attain control thru diet and meds we will then try to go off prednisone and diet. If we do not gain control then we will have to revert to Remigade.
- We will be here thru at least Monday and possibly Tuesday the way it looks now.
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